Save the Cord Foundation at University of Arizona Collaborator Fair

Save the Cord Foundation at University of Arizona Collaborator Fair

Save the Cord Foundation at University of Arizona Collaborator Fair

Save the Cord Foundation is always on the road connecting with families, medical professionals and members of the cord blood research community. We recently attended a remarkable event at the University of Arizona called the Collaborator Fair.

The concept of this fair was simple:

“. . . to catalyze partnerships and provide information about collaborative support across the Phoenix Metropolitan region.” (source: http://eepurl.com/bvvlVH )

Researchers, clinicians, funders and foundations were welcomed under one roof to learn and share from each other. We were encouraged to connect on multiple levels with an emphasis on making innovation in Arizona our #1 priority.

Some of the key topics discussed included:

  • Molecular and Cellular Biology
  • Physiology
  • Pathology and Diagnostics
  • Pharmacology and Therapeutics
  • Surgery
  • Preclinical and Clinical Trials
  • Bioengineering
  • Behavior
  • Public Health and Prevention
Cord Blood presentation at Collarator Fair

Jennifer Botsford talks about cord blood at ABRC Collaborator Fair

In particular, Jennifer Botsford, Program Manager of the Arizona Biomedical Research Commission, gave a great presentation about the work the commission is doing within the state and, in particular, spoke about the incredible success of our public cord blood program. This program is a perfect example of how both public and private collaborators are needed to ensure the success of public cord blood donation programs. Indeed, this particular program is built on partnerships with groups both in Arizona and out crossing both public and private barriers.

ABRC Presentation by Jennifer Botsford

Highlights from ABRC presentation at Collaborator Fair

 

 

This is what makes the great state of AZ so special!  It’s all about research and networking. Kristen Wilt from TMC and Charis Ober, STCF had the opportunity to hear global, cutting edge researchers talk about their projects, discoveries and then network with other event participants to connect and collaborate at this amazing event.  Kristen and Charis spoke to many attendees about saving cord blood and the AZ Public Cord Blood Program. The AZ Public Cord Blood Program has now had 22 life saving units of cord blood go to transplant around the world to treat some of the 80 life threatening diseases such as sickle cell anemia and leukemia..

Thank you Arizona Biomedical Research Commission for making this program possible and for expanding and promoting important scientific and cellular research in our great state of ARIZONA!!!!

 

Save the Cord Wins Achievement in Community Outreach

Save the Cord Wins Achievement in Community Outreach

Save the Cord Wins Achievement in Community Outreach

Cord Blood Foundation wins Achievement in Community Outreach

Accepting the award for Achievement in Community Outreach: Kristen Wilt, Charis Ober, Kimberly Romo (left to right)

Save the Cord Foundation was honoured this week at the awards ceremony for Influential Health and Medical Leaders held by Inside Tucson Business and Tucson Local Media.

Our foundation won in the category for Achievement in Community Outreach and we are very proud.  We wish to thank the prize committee, Inside Tucson Business, Tucson Local Media and, most importantly, our team of volunteers who have helped us over the years to become a strong and much appreciated voice in the world of cord blood advocacy.

It goes without saying that running a non-profit is never easy and the Arizona community has been such an important part of our success. Although our reach has grown far beyond the borders of this wonderful state, it is Arizona’s spirit and constant drive for innovation that has made us strong.  We continue to work on the local, national and even global level and take pride in reaching parents whether in Arizona or half-way across the world.

A few of the programs which have made us so proud over the years:

The list goes on. . . and will keeps growing thanks to the continued support we receive directly from parents who have discovered the life-saving benefits of cord blood and become passionate about our cause.

Our mission is far from over.  We want to see cord blood preservation become the new standard of care whether it is stored publicly or privately (that is the parent’s choice). Instead of 95% thrown away, we want to see 95% saved! We want parents to feel empowered with information and not confused by media. We want doctors and hospitals to have easy access to both public and private cord blood facilities. We want the world to learn about this amazing medical resource!  Please don’t throw it away.

Are you a parent?

If you are expecting a baby, you surely have questions. We have compiled a list of frequently asked questions as well as numerous facts on cord blood to help you through the decision making process.

Are you a medical professional or just wanting to learn about the latest developments in cord blood?

Cord blood collection may be a topic that already interests you or perhaps you are looking to learn more. We encourage you to join the Save the Cord Professional Community. . . participate in our Share the Science series (featuring experts in the cord blood industry like Dr. Joanne Kurtzberg, Michael Boo, Dr. Susana Gomez, etc), learn from your colleagues and share your own research with the industry.

Cord Blood Banking : Pro-active Parents Needed!

Cord Blood Banking : Pro-active Parents Needed!

Cord Blood Banking : Pro-active Parents Needed!

Dear Parents,

I have bad news. . . being a successful parent is not easy. It starts even before your baby is born and requires you to be pro-active. Being a successful parent has nothing to do with social class, it has to do with caring and standing up for what is right for you and your child. You have to be your child’s voice and ask the right questions, get the right information, connect with the right people who can help you.

Cord blood banking is one of those topics that overwhelms people. Many hospitals are still not connected with the National Public Cord Bank Inventory and so the option of cord blood donation is never brought up during pre-natal visits. In many cases, the issue is simply funding sometimes or the hospital putting priority on other programs. In hospitals where there is no pre-existing program, parents often get shut down when trying to find out more about cord blood. In the worst cases, it is just not even mentioned.

Let’s face it. . . while public donation programs are free for you to donate to they still involve costs to the public system and the logistics involved can be complicated depending on the location of your hospital and their particular partnership at the state level with the national public bank.  In hospitals where public donation is an option there is often a much more pro-active approach by doctors and staff to educate parents about this option and even private banking options.

This week’s Cord Blood Fact of the Week highlights this problem:

Parents must be pro-active for cord blood banking.

Cord Blood Banking: Pro-active Parents Needed

 

The truth is that regardless of where you live (especially in the US) you have lots of cord blood banking options:

If you do nothing, when your baby is born another cord will just be thrown away as medical waste when it could be used to help someone.  That someone could be a stranger thousands of miles away or that someone could be someone in your family.  Today, cord blood stem cells are being used to treat numerous diseases.

Get the facts on cord blood via this short video:

Save the Cord Foundation works with both public and private cord blood banking groups. As a non-commercial and unbiased foundation focused on cord blood education, we don’t endorse any particular private bank over another because we realize that parents have different needs.

However, we do encourage parents to be PRO-ACTIVE about saving their child’s cord blood. Whether you choose to donate or private bank your child’s cord blood, it is certain that you will have to be pro-active about getting the medical team on board, filling out a form or two, making sure you have what you need for the day you give birth (hint: you will need the collection kit!).

Yes, this is one of the most empowering decisions you will make as a parents. It is the first of many to come.  Be prepared to stay on your toes! Congratulations, you are now a successful parent!

Birth is empowering. Let it empower you!

 


baby-registry-preg-ad

Cord Blood Banking FREE Baby Registry

 

Expecting a baby? REGISTER FOR OUR FREE BABY REGISTRY
Get a free guide to cord blood by registering for our free baby registry.
You will also get a free 1-year subscription to Pregnancy Magazine, free baby shower invitations and access to other offers.

Follow us on Twitter: @SaveTheCord

Share this info directly on Facebook: http://fb.me/4FAZxFWCg

 

 

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Thank you to BioInformant for their on-going support for cord blood education. 

Bioinformant - Partner in Cord Blood Education

 

Stem Cells Controversy: Why the fuss?

Stem Cells Controversy: Why the fuss?

The media loves to talk about the “stem cells controversy.”  Stem cells are a critical to your health, located throughout your body, and routinely used in medicine so where’s the controversy?

During recent years, the term “stem cells” has been a hot topic in the media. The terminology is all very confusing and the articles are often misleading (even if they don’t mean to be). Unfortunately, this has left the general public scared of this term. “Stem cells” has become a dirty word. But, it should not be that way. So, why all the fuss?

Controversy in stem cell research and medicine can be reduced to a single issue: their source.  When stem cells are derived from embryos there are political, ethical, and religious concerns.  These stem cells are typically referred to as “embryonic stem cells.”  Other stem cells can come from bone marrow, umbilical cord blood, and dental pulp to name a few and do not involve embryos at all.  These are considered “controversy free” stem cells.

Even in adults, stem cells are needed to continuously repair and replace tissues.  For example, your bone marrow produces red blood cells at a rate of about 2 million per second.  Blood cells (which carry oxygen around your body) become worn out and misshapen after about 115 days and need to be replaced by new cells generated within your bone marrow (source: US National Library of Medicine).  In addition, stem cells can be found throughout your body in areas such as fat, blood, skin, teeth, and many more.

Cord Blood is Non-Controversial Source of Stem Cells

Stem Cells: What is the controversy exactly?

Not only are many stem cells uncontroversial, they also can have life-saving benefits.  In particular, stem cells collected from cord blood collected at birth are a truly non-controversial source of stem cells and possess many unique qualities not found in stem cells from other sources. They are the best of the best!  When a parent chooses to donate or privately bank the umbilical cord blood, he/she is salvaging stem cells that could be used to treat diseases such as leukemia, lymphoma, and sickle cell anemia.

Umbilical Cord Blood Basics:

Clearly stem cells are integral to your health.  This is why umbilical cord blood is such a powerful treatment and continues to offer hope and ground-breaking solutions in healthcare and medicine.  When you consider donating or privately banking your umbilical cord blood, understand that this is a controversy-free source of stem cells that would otherwise be discarded as medical waste.

Our mission at Save the Cord Foundation is to educate parents about this valuable resource.  We promote cord blood education and awareness to all. We distribute unbiased, factual information concerning the benefits of cord blood stem cells with the goal of preserving this valuable resource.

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What options do you have as a parent for saving your newborn’s cord blood? Essentially you can choose between public donation or private banking; however, you may need to call on a hybrid bank to help with a donation if your local hospital does not partner with a public cord bank. Learn more here.

Are you ready to choose a bank or donation hospital? Use our interactive map to find one near you.

 

 

We wish to thank Bryanne Wadington for her valuable contributions to this article.

LA Times Article Reaches Parents with Key Cord Blood Information

LA Times Article Reaches Parents with Key Cord Blood Information

Save the Cord Foundation was recently asked to contribute an important article on key cord blood information to be included in the August edition of the LA Times “Journey to Parenthood” section.  This important publication was made available in both print and digital versions reaching a huge audience of parents, just like you!

Everyday we meet people who have not heard about how cord blood is saving lives now — today. The first response is usually “Really? I thought it was still under research.”  Imagine their surprise when we start telling them that we know people (lots of people) whose lives have been saved thanks to cord blood treatments and therapies! And, yes, there is still research being done. . . lots of it, because we have only scratched the surface on what is possible with cord blood.  Today, there are over 70+ different diseases being treated with cord blood (update: in fact the official number of diseases has increased recently to over 80!). Can you name a few? We can. . . .leukemia, sickle cell anemia, various immunodeficiences like Wiskott-Aldrish syndrome, the list goes on.

Cord Blood - LA Times - Journey to Parenthood

See those 2 little boys? Cord blood changed their lives.

Reaching parents with key cord blood information is always our number one goal. However, telling the individual story of someone’s life and how cord blood helped them is worth 10 stacks of medical journals on the stuff! It all gets very technical, very fast. To hear the stories of a little boy like Noah, who received a donated cord blood and fought myelodysplastic syndromes (MDS) or Luke, who suffered from cerebral palsy and used his own cord blood to treat it. . .that is amazing!

You can read the full article here as it was posted in the LA Times for their Journey to Parenthood section (August 2015): Cord Blood: Providing Hope and Life Lines

Another reason that this article is so important. . . it shows two different cases:

  1. a child helped by donated cord blood (Public Donation)
  2. a child helped by his own cord blood (Private Banking)

These stories illustrate the point perfectly that, indeed, the world needs both publicly donated cord blood and privately banked cord blood. You, the parent, can look at both options and make the choice that best suits your needs. Neither is a bad choice and some parents opt to do both — public donation for one child and private banking for the other. Wonderful!

Learn more about Noah’s story here: Umbilical Cord Blood Donation Success Story

Learn more about Luke’s story here:  Importance of Private Banking

The point here is always the same. As a parent, you need to learn about this. Find out what your options are. Decide what is best for you. Then, proactively make that happen. Just please don’t sit idle or else your child’s cord blood will just be thrown away without a second thought.

Read more Real Stories from parents who donated, families who received donations and those who chose private banking.

Get Social!  Please do your part to support cord blood education by sharing this article and our website with the other parents you know. They deserve to know their options too.

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Save the Cord Foundation is a 501c3 non-profit with a global voice teaching parents about cord blood. Want to help us? We always need donations and volunteers. Get involved today!

 

About Save the Cord Foundation

Save the Cord Foundation, a 501c3 non-profit organization, was established to promote awareness of the life-saving benefits of cord blood based on unbiased and factual information. The Foundation educates parents, health professionals and the general public about the need to preserve this valuable medical resource while providing information on both public cord blood donation programs and family cord blood banks worldwide.

Support Save the Cord Foundation

Our mission depends on supporters like you. Please support our cause by making a donation or promoting our website and message where you can. We appreciate all the support!
(We NEVER ask for cash donations. Online donations are easier and safer. Thank you.)

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